“Beyond Terrifying”
Mary Weiser Carries a frying pan in her purse.
A few years ago, on a pleasant weekend getaway at their family place in northern Michigan, Mary’s 2 1/2-year-old daughter Cate and husband Marc caught a fish. They cleaned the fish and fried it for dinner. When, after a small bite, Cate complained that her mouth hurt, then her throat, Marc and Mary Weiser reached for the Benadryl, a proven first intervention to Cate’s allergies to eggs and other foods. But by the time the bottle was open, their daughter’s face and throat had swelled almost beyond recognition. In a matter of seconds, a bucolic family trip turned into life-and-death drama.
The Weisers administered epinephrine and called 9-1-1, but their newly built home wasn’t recognized on the 9-1-1 emergency grid. “We broke every law of the road to get to the emergency room as quickly as possible,” Mary Weiser says. The ER staff was waiting and immediately administered more medications. Cate was going to make it.
“The realization that my child had been dying in my arms from something I fed her is almost unbearable to remember,” says Weiser. “Knowing that it’s likely to happen again is beyond terrifying.”
After a similarly frightening experience when Cate was just a year old and reacted to a small piece of egg, the Weisers had sought the help of a pediatric allergist who determined that Cate was also allergic to peanuts and tree nuts, shellfish, dairy, wheat, oat, soy and seeds. Over the next year and a half, tests continued to show that Cate was not allergic to fish — an excellent source of fat and protein, two items severely lacking in Cate’s highly restricted diet.
The fish that nearly killed Cate was prepared in the frying pan Mary Weiser carries to ensure that food cooked anywhere for Cate is not contaminated with traces of anything she’s allergic to. Unfortunately, allergy tests aren’t 100 percent accurate and, as the allergist told the Weisers, the true test is how Cate’s body reacts when she puts food — like that seemingly innocuous bit of fish — in her mouth. Now, every new food Cate eats has to be consumed in a medical setting in case she has another anaphylactic response — one involving multiple bodily reactions that can rapidly cause death.
Food allergies affect 12 million Americans — including 4 percent of U.S. children — and ingestion isn’t always necessary; reactions through inhalation and skin contact may be a threat as well. This ease of transmission can make the most common of childhood events fraught with risk — and dread for parents. Birthday parties, public transportation, holiday fare, even classrooms can be a source of contamination. “Even taking her to a park, I wonder what the other kids had for lunch that day that might have been transferred to the play structure,” Mary Weiser says.
If fear and worry were kindled by Cate’s allergic reactions, so was Mary Weiser’s uncommon sense of activism. No newcomer to philanthropy, having raised $8.6 million for the Washtenaw Housing Alliance and more than $12 million in the Michigan political arena, Weiser became closely involved with the U-M Food Allergy Center. Led by James Baker Jr., M.D., chief of the allergy division, as well as Jim Baldwin, M.D., Marc McMorris, M.D., and Matthew Greenhawt, M.D., head of the center, clinical director and research director, respectively, the Food Allergy Center is dedicated to providing full care to food allergy patients, including expanding education, research and community services for patients and their families. Weiser and Baker have the shared goal of growing a food allergy Center of Excellence at the U-M.
Mary Weiser’s efforts have already secured more than $2 million for the center in just over a year, including a $1 million four-to-one matching gift from the Food Allergy Initiative and a $750,000 commitment from an anonymous Michigan family foundation. Marc and Mary Weiser have made a personal commitment of $100,000.
With the active support of husband Marc and father-in-law Ron Weiser, Mary is passionate about improving the lives of food allergy patients. Of Cate she says, “I want her to have the same opportunities everyone wants for their children. “I’m indebted to the University of Michigan for recognizing the importance of this effort,” Weiser says, “and those whose futures are made better because of the work of the Food Allergy Center surely will feel the same.” —RICK KRUPINSKI
